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Shayna and Karen

Our Mission

The Disorders of Chromosome 16 Foundation (DOC16) is dedicated both to promoting research and providing information on chromosome 16 abnormalities.

The Foundation provides information, education, and support to families of children living with a chromosome 16 disorder and to expectant parents confronting a similar diagnosis. The Foundation also serves as a resource aiding family, friends, caregivers, and medical professionals in their supportive roles.

Reaching Out

DOC16 is the only organization specifically for Chromosome 16 related disorders. We provide a wide range of educational and support services including:

Board of Directors

Karen Lange

Vice President
Rosalyn Gregg

Treasurer and Secretary
Wayne Lange

Board Member
Shayna Lange

Board Member
Susan Bebry

Medical Advisors

Peter A. Benn, Ph.D.
Director, Human Genetics Laboratories
Professor, Department of Pediatrics
University of Connecticut Health Center

Beth A. Pletcher, M.D., FAAP, FACMG
Associate Professor of Pediatrics
UMDNJ - New Jersey Medical School
New Jersey

Wendy P. Robinson,Ph.D.
Professor of Medical Genetics
B.C. Research Institute for Children's and Women's Health
Vancouver, B.C.

See Also: Frequently Asked Questions About the DOC16 Foundation


The Disorders of Chromosome 16 Foundation respects each family's personal decisions. Information provided on this web site is for educational purposes only and should not be used for diagnosis, treatment or as a substitute for informed medical care. Individuals should seek the counsel of a medically-qualified clinician regarding any matter related to genetic diagnosis, treatment or medical care.

All materials and images contained in this web site are the property of Disorders of Chromosome 16 Foundation. You may download or print copies of the reports or information contained within this site for your own private or professional non-commercial use only, provided that you do not change any copyright, trade mark or other proprietary notices. Reproduction or distribution of any materials included in this site for commercial use is prohibited. Use of images contained in this site for any purpose without express written consent from Disorders of Chromosome 16 Foundation is strictly prohibited.